Harley Bond's treatment for a form of childhood dementia ends after deal to buy drug company fell through The family of a boy with a rare form of childhood dementia said he had been given "a death sentence" after his treatment was withdrawn amid a collapsed takeover deal. Harley Bond, 11, was diagnosed seven years ago with a condition called Sanfilippo syndrome, which gradually limits a child's ability to walk, talk and eat.
Sheffield family plead for help after drug trial for boy, 11, is abruptly stopped
The Guardian - 27 Dec 2023 18:00
Harley Bond's treatment for a form of childhood dementia ends after deal to buy drug company fell through The family of a boy with a rare form of childhood dementia said he had been given "a death sentence" after his treatment was withdrawn amid a collapsed takeover deal. Harley Bond, 11, was diagnosed seven years ago with a condition called Sanfilippo syndrome, which gradually limits a child's ability to walk, talk and eat.
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